International Consensus Primer for Medical Practitioners (ICP)
Capital Health Network CPD Event on 5 October 2023
Professor Sonya Marshall-Gradisnik and Dr Natalie Eaton-Fitch PhD from NCNED delivered the first Australian lecture on Myalgic Encephalomyelitis (ME). The attendee claimed 1.5 hour CPD.
Disability and Functional Capacity Assessments
Bell’s Disability Scale
WHO Disability Assessment Schedule 2.0 (WHODAS 2.0)
Electronic Care and Needs Scale (eCANS)
The Short Form (36) Health Survey
LAWTON – BRODY
INSTRUMENTAL ACTIVITIES OF DAILY LIVING SCALE (I.A.D.L.)
Pacing
Take-Away Summary by Bateman Horne Centre.
Note: For patients with confirmed diagnosis by ME – ICP, scientifical name for PEM is Post Exertional Neuroimmune Exhaustion (PENE).
Activity and Energy Management – Pacing by Dialogue for ME/CFS.
Detailed Summary of Pacing by Dialogue for ME/CFS – with video.
Detailed Summary of Pacing by Dialogue for ME/CFS – video transcript.
Pacing Strategy – Energy Budget/Bank (EBB)
Spoon Theory
Application of Spoon Theory is explained in I’m a “Spoonie.” Here’s What I Wish More People Knew About Chronic Illness.
Energy Envelope Theory
DePaul Symptom Questionnaires
The DePaul Symptom Questionnaire-2 (DSQ-2) is an expanded and refined version of the original DSQ-1, developed by Professor Leonard Jason and colleagues at DePaul University.
DSQ-2 assesses a broader range of symptoms, including neurological, autonomic, immune and post-exertional symptoms, with improved coverage of the International Consensus Criteria (ME-ICC).
We recommend the DePaul Symptom Questionnaire-2 (DSQ-2) because it provides a more comprehensive, research-validated assessment of symptoms associated with Myalgic Encephalomyelitis (ME), with improved coverage of the International Consensus Criteria (ME-ICC) compared with the original DSQ-1.
DePaul Symptom Questionnaire 2 (DSQ-2)
We recommend the DePaul Post-Exertional Malaise Questionnaire (DPEMQ) for its more comprehensive assessment of post-exertional symptom exacerbation, including physical, cognitive, sensory and environmental triggers, symptom severity, recovery duration and the effects of pacing.
Unlike the shorter DSQ-PEM, which is primarily designed to identify the presence of post-exertional malaise, DPEMQ provides a more detailed understanding of the complex symptom exacerbation experienced by people with Myalgic Encephalomyelitis (ME), including features relevant to Post-Exertional Neuroimmune Exhaustion (PENE) under the International Consensus Criteria (ME-ICC).
DSQ-PEM-2 (20250 is a newer brief instrument intended to provide more comprehensive PEM assessment without the length of DPEMQ.
The DePaul Post-Exertional Malaise Questionnaire (DPEMQ)
DePaul Symptom Questionnaire Post-Exertional Malaise 2 (DSQ-PEM-2)
NCNED RID Presentations
Research, Innovation and Discovery (RID) 2024
Transient Receptor Potential (TRP) ion channels in ME/CFS: A portrait of discovery
Mapping the pathological changes in ME/CFS using MRI
Severe & Very Severe ME
CARE FOR PEOPLE WITH SEVERE AND VERY SEVERE ME/CFS
The Healthcare Journal’s Special Edition on Severe ME
Special Issue “ME/CFS – the Severely and Very Severely Affected”
Reductions in Cerebral Blood Flow Can Be Provoked by Sitting in Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients
Life-Threatening Malnutrition in Very Severe ME/CFS
Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS
Highlighting the invisible: Frail, Homebound and Bedridden People
ME/CFS and anaesthesia
(myalgic encephalomyelitis or encephalopathy/
chronic fatigue syndrome)
Experience of Severe Myalgic Encephalomyelitis (ME) & Occupational Participation: Qualitative Study.
What Services Occupational Therapists Offer to Adults with Severe Myalgic Encephalomyelitis?
Functional Capacity Assessment for people with ME: A Guide for OT
Resources for Hospital Admission/Care Setting for People with ME – Personal Care Plan etc
Doctors with M.E.
ME/CFS: Top Tips for Doctors
List of Research
List of Myalgic Encephalomyelitis – International Consensus Criteria (ME-ICC) Research
List of Myalgic Encephalomyelitis – Canadian Consensus Criteria (ME/CFS-CCC) Research
List of NCNED Research
Challenging Symptoms
Mast Cell Activation Syndrome (MCAS)
CPD (May not be recognised for Australian CPD points.)
Bateman Horne Centre – Health Professionals
Long COVID Patient Experiences and Systems of Care (Course 11 Dec 2023 to 1 April 2024)
TOPICS COVERED:
Module 1: Lessons from Patient Experiences with Long COVID
Module 2: Federal Initiatives to Improve Care in Long COVID
Module 3: Resources for Providers, Nurses and Patients
COURSE DATES:
December 11 – April 1
This Enduring Activity has been approved for CME and NCPD credit. Participants earn one credit/contact hour upon completion of all modules and a final assessment and evaluation.