Resources for Health Professionals

Table of contents

International Consensus Primer for Medical Practitioners (ICP)

Capital Health Network CPD Event on 5 October 2023

Professor Sonya Marshall-Gradisnik and Dr Natalie Eaton-Fitch PhD from NCNED delivered the first Australian lecture on Myalgic Encephalomyelitis (ME). The attendee claimed 1.5 hour CPD.

Disability and Functional Capacity Assessments

Bell’s Disability Scale

WHO Disability Assessment Schedule 2.0 (WHODAS 2.0)

Simple 12 item score sheet

Complex 36 item score sheet

Electronic Care and Needs Scale (eCANS)

The Short Form (36) Health Survey



Take-Away Summary by Bateman Horne Centre.

Note: For patients with confirmed diagnosis by ME – ICP, scientifical name for PEM is Post Exertional Neuroimmune Exhaustion (PENE).

Activity and Energy Management – Pacing by Dialogue for ME/CFS.

Detailed Summary of Pacing by Dialogue for ME/CFS – with video.

Detailed Summary of Pacing by Dialogue for ME/CFS – video transcript.

Pacing Strategy – Energy Budget/Bank (EBB)

Spoon Theory

Application of Spoon Theory is explained in I’m a “Spoonie.” Here’s What I Wish More People Knew About Chronic Illness.

Energy Envelope Theory

The DePaul Symptom & Severity, & PEM Questionnaires

DePaul Symptom Questionnaire 2 (DSQ-2)

DePaul Symptom Questionnaire – Post-Exertional Malaise short form (DSQ-PEM)

NCNED RID Presentations

Research, Innovation and Discovery (RID) 2024

Conference recordings

Transient Receptor Potential (TRP) ion channels in ME/CFS: A portrait of discovery

Mapping the pathological changes in ME/CFS using MRI

Severe & Very Severe ME


BACME Severely Affected Shared Practice Guide

The Healthcare Journal’s Special Edition on Severe ME

Special Issue “ME/CFS – the Severely and Very Severely Affected”

Reductions in Cerebral Blood Flow Can Be Provoked by Sitting in Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients

Life-Threatening Malnutrition in Very Severe ME/CFS

Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS

Highlighting the invisible: Frail, Homebound and Bedridden People

Experience of Severe Myalgic Encephalomyelitis (ME) & Occupational Participation: Qualitative Study.

What Services Occupational Therapists Offer to Adults with Severe Myalgic Encephalomyelitis?

Resources for Hospital Admission/Care Setting for People with ME – Personal Care Plan etc

Doctors with M.E.

ME/CFS: Top Tips for Doctors

List of Research

List of Myalgic Encephalomyelitis – International Consensus Criteria (ME-ICC) Research

List of Myalgic Encephalomyelitis – Canadian Consensus Criteria (ME/CFS-CCC) Research

List of NCNED Research

Challenging Symptoms

Mast Cell Activation Syndrome (MCAS)

CPD (May not be recognised for Australian CPD points.)

Bateman Horne Centre – Health Professionals

Long COVID Patient Experiences and Systems of Care (Course 11 Dec 2023 to 1 April 2024)


Module 1: Lessons from Patient Experiences with Long COVID

Module 2: Federal Initiatives to Improve Care in Long COVID

Module 3: Resources for Providers, Nurses and Patients

December 11 – April 1

This Enduring Activity has been approved for CME and NCPD credit. Participants earn one credit/contact hour upon completion of all modules and a final assessment and evaluation.

Resources for Health Professionals by ME/CFS South Australia