Resources for Health Professionals

Table of Contents

    International Consensus Primer for Medical Practitioners (ICP)


    Capital Health Network CPD Event on 5 October 2023

    Professor Sonya Marshall-Gradisnik and Dr Natalie Eaton-Fitch PhD from NCNED delivered the first Australian lecture on Myalgic Encephalomyelitis (ME). The attendee claimed 1.5 hour CPD.


    Disability and Functional Capacity Assessments

    Bell’s Disability Scale

    WHO Disability Assessment Schedule 2.0 (WHODAS 2.0)

    Simple 12 item score sheet

    Complex 36 item score sheet

    Electronic Care and Needs Scale (eCANS)

    The Short Form (36) Health Survey

    LAWTON – BRODY
    INSTRUMENTAL ACTIVITIES OF DAILY LIVING SCALE (I.A.D.L.)


    Pacing

    Take-Away Summary by Bateman Horne Centre.

    Note: For patients with confirmed diagnosis by ME – ICP, scientifical name for PEM is Post Exertional Neuroimmune Exhaustion (PENE).

    Activity and Energy Management – Pacing by Dialogue for ME/CFS.

    Detailed Summary of Pacing by Dialogue for ME/CFS – with video.

    Detailed Summary of Pacing by Dialogue for ME/CFS – video transcript.

    Pacing Strategy – Energy Budget/Bank (EBB)

    Spoon Theory

    Application of Spoon Theory is explained in I’m a “Spoonie.” Here’s What I Wish More People Knew About Chronic Illness.

    Energy Envelope Theory


    The DePaul Symptom & Severity, & PEM Questionnaires

    DePaul Symptom Questionnaire 2 (DSQ-2)

    DePaul Symptom Questionnaire – Post-Exertional Malaise short form (DSQ-PEM)


    NCNED RID Presentations

    Research, Innovation and Discovery (RID) 2024

    Conference recordings

    Transient Receptor Potential (TRP) ion channels in ME/CFS: A portrait of discovery


    Mapping the pathological changes in ME/CFS using MRI


    Severe & Very Severe ME

    CARE FOR PEOPLE WITH SEVERE AND VERY SEVERE ME/CFS

    BACME Severely Affected Shared Practice Guide

    The Healthcare Journal’s Special Edition on Severe ME

    Special Issue “ME/CFS – the Severely and Very Severely Affected”

    Reductions in Cerebral Blood Flow Can Be Provoked by Sitting in Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients

    Life-Threatening Malnutrition in Very Severe ME/CFS

    Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS

    Highlighting the invisible: Frail, Homebound and Bedridden People

    ME/CFS and anaesthesia
    (myalgic encephalomyelitis or encephalopathy/
    chronic fatigue syndrome)

    Experience of Severe Myalgic Encephalomyelitis (ME) & Occupational Participation: Qualitative Study.

    What Services Occupational Therapists Offer to Adults with Severe Myalgic Encephalomyelitis?

    Functional Capacity Assessment for people with ME: A Guide for OT


    Resources for Hospital Admission/Care Setting for People with ME – Personal Care Plan etc


    Doctors with M.E.

    ME/CFS: Top Tips for Doctors


    List of Research

    List of Myalgic Encephalomyelitis – International Consensus Criteria (ME-ICC) Research

    List of Myalgic Encephalomyelitis – Canadian Consensus Criteria (ME/CFS-CCC) Research

    List of NCNED Research


    Challenging Symptoms

    Mast Cell Activation Syndrome (MCAS)


    CPD (May not be recognised for Australian CPD points.)

    Bateman Horne Centre – Health Professionals

    Long COVID Patient Experiences and Systems of Care (Course 11 Dec 2023 to 1 April 2024)

    TOPICS COVERED:

    Module 1: Lessons from Patient Experiences with Long COVID

    Module 2: Federal Initiatives to Improve Care in Long COVID

    Module 3: Resources for Providers, Nurses and Patients

    COURSE DATES:
    December 11 – April 1

    This Enduring Activity has been approved for CME and NCPD credit. Participants earn one credit/contact hour upon completion of all modules and a final assessment and evaluation.


    Resources for Health Professionals by ME/CFS South Australia