Author: Rachel Makepeace

Calling on the Statewide Clinical Network for ME

We respectfully request clinicians and the community to support our call to establish the Statewide Clinical Network for ME in Queensland, Australia. Statewide Clinical Network for ME The objectives of the Statewide Clinical Network for ME will be; Enhance the understanding of ME and promote clarity and consistency for optimal clinical identification and treatment Consider… Continue reading Calling on the Statewide Clinical Network for ME

Knowledge Translation and Research Advisor to the Board

We are excited to welcome Dr Maria Alejandra Pinero de Plaza (PhD) to our team! Alejandra has accepted to be our Knowledge Translation and Research Advisor to the Board. Alejandra is a scientist committed to facilitating healthy living and better public health services through knowledge translation and health research. She is a Research Fellow at… Continue reading Knowledge Translation and Research Advisor to the Board

Open Letter: Recognition of medical specialty of Myalgic Encephalomyelitis (ME) in Australia

To Whom It May Concern RE: Recognition of Medical Specialty of Myalgic Encephalomyelitis (ME) in Australia [1] I am writing this open letter to start a conversation about applying for recognition of a new medical specialty in ME with the Medical Board of Australia, thus creating an “official” ME Specialist designation in Australia. From more… Continue reading Open Letter: Recognition of medical specialty of Myalgic Encephalomyelitis (ME) in Australia

We Are Registered As A Charity

Donation

We are excited to announce that we are officially registered as an Australian charity effective from 7 June 2021. We are now waiting on the endorsement for Deductible Gift Recipient (DGR) status so that we can receive tax-deductible donations from Australian taxpayers. We will be grateful for your donation as a gesture of your support… Continue reading We Are Registered As A Charity

Very Severe ME: Are Intimate Relationships Possible?

This article is cross-posted at Phoenix Rising. Please visit their site and join their discussion. On August 8th our ME community honours Severe ME Understanding and Remembrance Day, this year and every year. Rachel M. shares her thoughts on what it’s like living with Very Severe ME … Hello. I’m Rachel from Queensland, Australia. I… Continue reading Very Severe ME: Are Intimate Relationships Possible?

Light Up The Night Australia 2021

Jacaranda Water Tower, Logan City

Following up ME Awareness Month blog, I would like to share how beautifully Logan City night lit in blue. I wasn’t expecting to see them in my own eyes because I’m homebound and mostly bedbound. But my boyfriend surprised me with the spur of the moment drive. The beautiful blue light was peacefully, but unmistakeably… Continue reading Light Up The Night Australia 2021

NDIS Access Request with ME

My experience with National Disability Insurance Scheme (NDIS) Access Request with ME has been confusing, frustrating, distressing, upsetting, depressing, and… You get the idea it has been a nightmare. I am going to share what I learnt from the process. I hope it will help people with ME (pwME) prepare the Access Request. This is… Continue reading NDIS Access Request with ME

ME Awareness Month

May12.org initiated the Global Awareness Day for Complex Immunological & Neurological Diseases. Accordingly, 12 May is the International ME Awareness Day and May is ME Awareness Month. Blue is the awareness colour for ME. 12th of May was chosen because it’s the birth date of Florence Nightingale, who is believed to have ME. ME is… Continue reading ME Awareness Month