We are excited to welcome Dr Natalie Eaton-Fitch (PhD) to our Research Advisor to the Board. Natalie is a Research Fellow at the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Griffith University. She holds a multidisciplinary PhD in Immunology and Epidemiology in the field of ME/CFS. Natalie’s research at the NCNED has been instrumental… Continue reading Research Advisor to the Board
Long before ME Group Australia was incorporated and before I wrote the Open Letter, the dream of Speciality Clinic for Myalgic Encephalomyelitis (ME) was growing quietly. I called it “Field of Dreams”. Why did I call it “Field of Dreams”? Here is 9 minutes clip from Universal Picture to refresh your memory. When we build… Continue reading Field of Dreams | When you build it, they will come.
Did you know that Qld has statewide HealthPathway for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? HealthPathways is a web-based portal with evidence-based information on the assessment and management of common clinical conditions including referral guidance. The pathways are written by General Practitioners with support from local GPs, hospital based specialists and other subject matter experts. Clinical Excellence… Continue reading QLD ME/CFS HealthPathway
On Friday, 9 June 2023, Consumers Health Forum (CHF) hosted another webinar with Minister for Health and Aged Care, Hon. Mark Butler MP asking questions about the Budget 2023-24. The Consumers Health Forum of Australia (CHF) is the national peak body representing the interests of Australian healthcare consumers. In their previous webinar, Minister Butler has… Continue reading Consumers Health Forum (CHF) Webinar: Minister Butler talks to consumers
We are excited to welcome Geoff Bryant as our newest director. Geoff is a motivated, personable and effective health professional, with wide-ranging experience and education. Particular interests in improving system sustainability through delivering the right care in the most appropriate setting; enabling all clinicians to work to top of scope; improving access and outcomes through… Continue reading Our New Director
“Panic” is the word I would use to describe the realisation of Long Covid in the Australian healthcare space. Everywhere, humans are pleading for help in despair. Patients cannot find a doctor who could help them. They need help. The majority of doctors don’t know what to do with Long Covid (LC). Nevertheless, they face… Continue reading Private Clinicians’ Network for ME & LC
Consumers Health Forum of Australia (CHF) is Australia’s leading advocate on consumer health care issues. On 5 August, they successfully hosted ABC “Q&A” style webinar with the new Minister for Health and Aged Care, the Hon. Mark Butler MP. I was eager to absorb the Minister’s vision and strategy, particularly in the area of providing… Continue reading Meet with the Minister | Consumers Health Forum of Australia (CHF)
8 August is Severe ME Understanding & Remembrance Day. Severe ME Day was initiated by the 25% M.E. Group, the UK charity that campaigns to raise awareness of ME and provide services to people affected by Severe Myalgic Encephalomyelitis (ME). It is a day to honour the strength of spirit of all those who have endured… Continue reading Severe ME Day 2022
MRI manifestation of brainstem regulatory deficits in ME/CFS A researcher from the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Associate Professor Leighton Barnden presented their MRI research at the ME/CFS International Conference 2021:RID held in November last year. The NCNED has shared the recording of the Associate Professor’s presentation on their Facebook page. We… Continue reading MRI Research Presentation by Associate Professor Leighton Barnden
We are excited to welcome Dr Kiran Thapaliya (PhD) to our team. Kiran has accepted to be our Neuroimaging Research Advisor to the Board.
His expertise will strengthen the evidence on neurological abnormalities with ME-ICC. It will help us to create Clinical Pathway for ME and Neuroimaging protocol for clinicians.