“Panic” is the word I would use to describe the realisation of Long Covid in the Australian healthcare space. Everywhere, humans are pleading for help in despair. Patients cannot find a doctor who could help them. They need help. The majority of doctors don’t know what to do with Long Covid (LC). Nevertheless, they face… Continue reading Private Clinicians’ Network for ME & LC
Consumers Health Forum of Australia (CHF) is Australia’s leading advocate on consumer health care issues. On 5 August, they successfully hosted ABC “Q&A” style webinar with the new Minister for Health and Aged Care, the Hon. Mark Butler MP. I was eager to absorb the Minister’s vision and strategy, particularly in the area of providing… Continue reading Meet with the Minister | Consumers Health Forum of Australia (CHF)
8 August is Severe ME Understanding & Remembrance Day. Severe ME Day was initiated by the 25% M.E. Group, the UK charity that campaigns to raise awareness of ME and provide services to people affected by Severe Myalgic Encephalomyelitis (ME). It is a day to honour the strength of spirit of all those who have endured… Continue reading Severe ME Day 2022
MRI manifestation of brainstem regulatory deficits in ME/CFS A researcher from the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Associate Professor Leighton Barnden presented their MRI research at the ME/CFS International Conference 2021:RID held in November last year. The NCNED has shared the recording of the Associate Professor’s presentation on their Facebook page. We… Continue reading MRI Research Presentation by Associate Professor Leighton Barnden
We are excited to welcome Dr Kiran Thapaliya (PhD) to our team. Kiran has accepted to be our Neuroimaging Research Advisor to the Board.
His expertise will strengthen the evidence on neurological abnormalities with ME-ICC. It will help us to create Clinical Pathway for ME and Neuroimaging protocol for clinicians.
On 16 and 17 November 2021, The National Centre for Neuroimmunology and Emerging Disease (NCNED) hosted the ME/CFS International Conference 2021: RID-Research Innovation and Discovery conference. As a caution, this layperson report may not agree with other attendants’ reports and feedbacks. I wish I could share the details of all presentations and lectures from the… Continue reading Research Innovation and Discovery (RID) International Conference 2021 – Report
We respectfully request clinicians and the community to support our call to establish the Statewide Clinical Network for ME in Queensland, Australia. Statewide Clinical Network for ME The objectives of the Statewide Clinical Network for ME will be; Enhance the understanding of ME and promote clarity and consistency for optimal clinical identification and treatment Consider… Continue reading Calling on the Statewide Clinical Network for ME
We are excited to welcome Dr Maria Alejandra Pinero de Plaza (PhD) to our team! Alejandra has accepted to be our Knowledge Translation and Research Advisor to the Board. Alejandra is a scientist committed to facilitating healthy living and better public health services through knowledge translation and health research. She is a Research Fellow at… Continue reading Knowledge Translation and Research Advisor to the Board
To Whom It May Concern RE: Recognition of Medical Specialty of Myalgic Encephalomyelitis (ME) in Australia  I am writing this open letter to start a conversation about applying for recognition of a new medical specialty in ME with the Medical Board of Australia, thus creating an “official” ME Specialist designation in Australia. From more… Continue reading Open Letter: Recognition of medical specialty of Myalgic Encephalomyelitis (ME) in Australia
We are excited to announce that we are officially registered as an Australian charity effective from 7 June 2021. We are now waiting on the endorsement for Deductible Gift Recipient (DGR) status so that we can receive tax-deductible donations from Australian taxpayers. We will be grateful for your donation as a gesture of your support… Continue reading We Are Registered As A Charity