8 August is Severe ME Understanding & Remembrance Day. Severe ME Day was initiated by the 25% M.E. Group, the UK charity that campaigns to raise awareness of ME and provide services to people affected by Severe Myalgic Encephalomyelitis (ME). It is a day to honour the strength of spirit of all those who have endured… Continue reading Severe ME Day 2022
Very Severe ME: Are Intimate Relationships Possible?
This article is cross-posted at Phoenix Rising. Please visit their site and join their discussion. On August 8th our ME community honours Severe ME Understanding and Remembrance Day, this year and every year. Rachel M. shares her thoughts on what it’s like living with Very Severe ME … Hello. I’m Rachel from Queensland, Australia. I… Continue reading Very Severe ME: Are Intimate Relationships Possible?
Light Up The Night Australia 2021
Following up ME Awareness Month blog, I would like to share how beautifully Logan City night lit in blue. I wasn’t expecting to see them in my own eyes because I’m homebound and mostly bedbound. But my boyfriend surprised me with the spur of the moment drive. The beautiful blue light was peacefully, but unmistakeably… Continue reading Light Up The Night Australia 2021
ME Awareness Month
May12.org initiated the Global Awareness Day for Complex Immunological & Neurological Diseases. Accordingly, 12 May is the International ME Awareness Day and May is ME Awareness Month. Blue is the awareness colour for ME. 12th of May was chosen because it’s the birth date of Florence Nightingale, who is believed to have ME. ME is… Continue reading ME Awareness Month
Energy Budget/Bank (EBB)
International Consensus Primer for Medical Practitioners (ICP) is a fit-for-purpose clinical guideline for ME. It guides medical practitioners and patients on how to make the diagnosis and design personalised management & treatment strategy. When you suspect you are suffering from ME, I recommend learning and practising pacing even if you don’t have the official diagnosis… Continue reading Energy Budget/Bank (EBB)
Are ME and CFS same?
Are ME and CFS same? No. Chronic Fatigue Syndrome (CFS) is defined by the diagnostic criteria The chronic fatigue syndrome: a comprehensive approach to its definition and study. International Chronic Fatigue Syndrome Study Group or widely known as Fukuda criteria (1994). Myalgic Encephalomyelitis (ME) is defined by the diagnostic criteria Myalgic encephalomyelitis: International Consensus Criteria… Continue reading Are ME and CFS same?