You are cordially invited to ME Group Australia (MEGA)’s webinar events for Severe ME Understanding & Remembrance Day (Severe ME Day). For this August event, we plan them into 2 separate events during the last week of August.
| How to Care for Severe ME Presentations | Tue, 26 August 2025 from 6:00 pm (Brisbane time) |
| Lived Experience Forum | Sat, 30 August 2025 from 3:00 pm (Brisbane time) |
Purpose for the event
As a small charity who does not receive government funding, this event will be a light touch and community focused approach. MEGA dedicates to improving health outcomes for Myalgic Encephalomyelitis (ME). Our focus is how to practically help people with ME (pwME), people with Long Covid (pwLC) whose symptoms fits case definition of ME and ME/CFS, and their healthcare professionals.
Our passion is to establish a speciality clinic for ME and related diseases. This webinar event is part of our capacity and credibility building strategy. If you can comfortably do so, we are grateful for your donation to support our dream come true.
The event
Our non-ME vlunteer Dr Stanley Du Preez and Julie Hughes, our Occupational Therapy Advisor to the Board, will host the event.
Our events are co-designed with people living with Severe ME (pwSME) and their caregivers, allied health professionals, researchers, academics, and NDIS service providers. We believe that meaningful care models for people with ME are best achieved through genuine collaboration across lived experience and professionals with special interests in providing person centred support for pwSME.
We will record the event and share on our YouTube channel as soon as they become available.
Event programme
We have confirmed presenters for both Presentations and Lived Experience Forum.
Event programme will be uploaded here as soon as they become available.
Tue, 26 August: How to Care for Severe ME Presentations
| Event Host | Dr Stanley Du Preez, MD Community Coordinator (Volunteer) |
| Consumer & Community Involved Research in Telehealth and Frail Homebound and Bedridden People (FHBP) | Dr M. Alejandra Pinero de Plaza, PhD Research Fellow, Caring Futures Institute, Flinders University Penelope McMillan Speakperson and Director at ME/CFS Australia Ltd. |
| Role of Speech Pathologist in Severe ME | Heenal Narsey Certified Practising Speech Pathologist (MSP, MSPA-CPSP) |
| Severe ME, Notes For Australia | Greg Crowhurst, Nurse, Author, Musician, Full-time Carer for wife with Very Severe ME |
Sat, 30 August 2025: Lived Experience Forum
Topic of this year’s forum is Assistive Technology (AT)
| Forum Host | Julie Hughes Lecturer in Occupational Therapy , Australian Catholic University (ACU), Occupational Therapy Advisor to the Board |
| Special Guest | Clare Batkin Occupational Therapist, Clinical Educator, Sessional Academic, Founder of the clinical education business Your OT Tutor. |
| Jon Mitchelle Operations Manager and Assistive Technology Manager at Smart Places Australia | |
| Jo Mak Neurological Physiotherapist Founder of mobile Allied Health Clinic, My Rehab Team. | |
| Lived Experience Panels | Sandra Adrianne Ketra Carla Erin Lauren Shelley Tracey |
Our gratitude
We would like to express our gratitude for all presenters for their time to share their expertise at the event. Purpose of their contribution in the event is to help patients with ME and Long Covid.
The event is free for everyone. If you are comfortably able to do so, we would appreciate your donation in lieu of ticket price.
We look forward to seeing you at the events!
