“Panic” is the word I would use to describe the realisation of Long Covid in the Australian healthcare space. Everywhere, humans are pleading for help in despair. Patients cannot find a doctor who could help them. They need help. The majority of doctors don’t know what to do with Long Covid (LC). Nevertheless, they face… Continue reading Private Clinicians’ Network for ME & LC
8 August is Severe ME Understanding & Remembrance Day. Severe ME Day was initiated by the 25% M.E. Group, the UK charity that campaigns to raise awareness of ME and provide services to people affected by Severe Myalgic Encephalomyelitis (ME). It is a day to honour the strength of spirit of all those who have endured… Continue reading Severe ME Day 2022
MRI manifestation of brainstem regulatory deficits in ME/CFS A researcher from the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Associate Professor Leighton Barnden presented their MRI research at the ME/CFS International Conference 2021:RID held in November last year. The NCNED has shared the recording of the Associate Professor’s presentation on their Facebook page. We… Continue reading MRI Research Presentation by Associate Professor Leighton Barnden
We are excited to welcome Dr Kiran Thapaliya (PhD) to our team. Kiran has accepted to be our Neuroimaging Research Advisor to the Board.
His expertise will strengthen the evidence on neurological abnormalities with ME-ICC. It will help us to create Clinical Pathway for ME and Neuroimaging protocol for clinicians.
On 16 and 17 November 2021, The National Centre for Neuroimmunology and Emerging Disease (NCNED) hosted the ME/CFS International Conference 2021: RID-Research Innovation and Discovery conference. As a caution, this layperson report may not agree with other attendants’ reports and feedbacks. I wish I could share the details of all presentations and lectures from the… Continue reading Research Innovation and Discovery (RID) International Conference 2021 – Report