Medical Advisor to the Board

We are delighted to welcome Dr Gary Deed to our Medical Advisor to the Board. His expertise and experience will be invaluable asset in planning and delivering ME Group Australia’s vision and aspirations. Dr Deed has been a quiet yet powerful advocate for ME/CFS and related diseases. Over a decade, he contributed his time and… Continue reading Medical Advisor to the Board

Occupational Therapy Advisor to the Board

We are delighted to welcome Julie Hughes to our Occupational Therapy Advisor to the Board. We hope to strengthen knowledge and capacity of our future clinic with her guidance. The role of Occupational Therapy is to assist people to participate in everyday life, the things they want to do, need to do, or are expected… Continue reading Occupational Therapy Advisor to the Board

Research Advisor to the Board

We are excited to welcome Dr Natalie Eaton-Fitch (PhD) to our Research Advisor to the Board. Natalie is a Research Fellow at the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Griffith University. She holds a multidisciplinary PhD in Immunology and Epidemiology in the field of ME/CFS. Natalie‚Äôs research at the NCNED has been instrumental… Continue reading Research Advisor to the Board

Field of Dreams | When you build it, they will come.

Long before ME Group Australia was incorporated and before I wrote the Open Letter, the dream of Speciality Clinic for Myalgic Encephalomyelitis (ME) was growing quietly. I called it “Field of Dreams”. Why did I call it “Field of Dreams”? Here is 9 minutes clip from Universal Picture to refresh your memory. When we build… Continue reading Field of Dreams | When you build it, they will come.

QLD ME/CFS HealthPathway

Did you know that Qld has statewide HealthPathway for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? HealthPathways is a web-based portal with evidence-based information on the assessment and management of common clinical conditions including referral guidance. The pathways are written by General Practitioners with support from local GPs, hospital based specialists and other subject matter experts. Clinical Excellence… Continue reading QLD ME/CFS HealthPathway

Private Clinicians’ Network for ME & LC

“Panic” is the word I would use to describe the realisation of Long Covid in the Australian healthcare space. Everywhere, humans are pleading for help in despair. Patients cannot find a doctor who could help them. They need help. The majority of doctors don’t know what to do with Long Covid (LC). Nevertheless, they face… Continue reading Private Clinicians’ Network for ME & LC

Severe ME Day 2022

Image Credit: Lea Aring https://www.leaaring.de/ | https://www.mecfs.de/presse/pressefotos/

8 August is Severe ME Understanding & Remembrance Day.  Severe ME Day was initiated by the 25% M.E. Group, the UK charity that campaigns to raise awareness of ME and provide services to people affected by Severe Myalgic Encephalomyelitis (ME). It is a day to honour the strength of spirit of all those who have endured… Continue reading Severe ME Day 2022

MRI Research Presentation by Associate Professor Leighton Barnden

MRI manifestation of brainstem regulatory deficits in ME/CFS A researcher from the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Associate Professor Leighton Barnden presented their MRI research at the ME/CFS International Conference 2021:RID held in November last year. The NCNED has shared the recording of the Associate Professor’s presentation on their Facebook page. We… Continue reading MRI Research Presentation by Associate Professor Leighton Barnden

MRI and Neuroimaging Research Advisor to the Board

We are excited to welcome Dr Kiran Thapaliya (PhD) to our team. Kiran has accepted to be our Neuroimaging Research Advisor to the Board.

His expertise will strengthen the evidence on neurological abnormalities with ME-ICC. It will help us to create Clinical Pathway for ME and Neuroimaging protocol for clinicians.

Research Innovation and Discovery (RID) International Conference 2021 – Report

Photo by Luis Quintero on Pexels.com

On 16 and 17 November 2021, The National Centre for Neuroimmunology and Emerging Disease (NCNED) hosted the ME/CFS International Conference 2021: RID-Research Innovation and Discovery conference. As a caution, this layperson report may not agree with other attendants’ reports and feedbacks. I wish I could share the details of all presentations and lectures from the… Continue reading Research Innovation and Discovery (RID) International Conference 2021 – Report