Medical Advisor to the Board

We are delighted to welcome Dr Gary Deed to our Medical Advisor to the Board. His expertise and experience will be invaluable asset in planning and delivering ME Group Australia’s vision and aspirations. Dr Deed has been a quiet yet powerful advocate for ME/CFS and related diseases. Over a decade, he contributed his time and… Continue reading Medical Advisor to the Board

Occupational Therapy Advisor to the Board

We are delighted to welcome Julie Hughes to our Occupational Therapy Advisor to the Board. We hope to strengthen knowledge and capacity of our future clinic with her guidance. The role of Occupational Therapy is to assist people to participate in everyday life, the things they want to do, need to do, or are expected… Continue reading Occupational Therapy Advisor to the Board

Research Advisor to the Board

We are excited to welcome Dr Natalie Eaton-Fitch (PhD) to our Research Advisor to the Board. Natalie is a Research Fellow at the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Griffith University. She holds a multidisciplinary PhD in Immunology and Epidemiology in the field of ME/CFS. Natalie’s research at the NCNED has been instrumental… Continue reading Research Advisor to the Board

Field of Dreams | When you build it, they will come.

Long before ME Group Australia was incorporated and before I wrote the Open Letter, the dream of Speciality Clinic for Myalgic Encephalomyelitis (ME) was growing quietly. I called it “Field of Dreams”. Why did I call it “Field of Dreams”? Here is 9 minutes clip from Universal Picture to refresh your memory. When we build… Continue reading Field of Dreams | When you build it, they will come.

QLD ME/CFS HealthPathway

Did you know that Qld has statewide HealthPathway for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? HealthPathways is a web-based portal with evidence-based information on the assessment and management of common clinical conditions including referral guidance. The pathways are written by General Practitioners with support from local GPs, hospital based specialists and other subject matter experts. Clinical Excellence… Continue reading QLD ME/CFS HealthPathway

Consumers Health Forum (CHF) Webinar: Minister Butler talks to consumers

On Friday, 9 June 2023, Consumers Health Forum (CHF) hosted another webinar with Minister for Health and Aged Care, Hon. Mark Butler MP asking questions about the Budget 2023-24. The Consumers Health Forum of Australia (CHF) is the national peak body representing the interests of Australian healthcare consumers. In their previous webinar, Minister Butler has… Continue reading Consumers Health Forum (CHF) Webinar: Minister Butler talks to consumers

Private Clinicians’ Network for ME & LC

“Panic” is the word I would use to describe the realisation of Long Covid in the Australian healthcare space. Everywhere, humans are pleading for help in despair. Patients cannot find a doctor who could help them. They need help. The majority of doctors don’t know what to do with Long Covid (LC). Nevertheless, they face… Continue reading Private Clinicians’ Network for ME & LC

Meet with the Minister | Consumers Health Forum of Australia (CHF)

Meet with the Minister | Consumers Health Forum of Australia (CHF)

Consumers Health Forum of Australia (CHF) is Australia’s leading advocate on consumer health care issues. On 5 August, they successfully hosted ABC “Q&A” style webinar with the new Minister for Health and Aged Care, the Hon. Mark Butler MP. I was eager to absorb the Minister’s vision and strategy, particularly in the area of providing… Continue reading Meet with the Minister | Consumers Health Forum of Australia (CHF)

MRI and Neuroimaging Research Advisor to the Board

We are excited to welcome Dr Kiran Thapaliya (PhD) to our team. Kiran has accepted to be our Neuroimaging Research Advisor to the Board.

His expertise will strengthen the evidence on neurological abnormalities with ME-ICC. It will help us to create Clinical Pathway for ME and Neuroimaging protocol for clinicians.

Calling on the Statewide Clinical Network for ME

We respectfully request clinicians and the community to support our call to establish the Statewide Clinical Network for ME in Queensland, Australia. Statewide Clinical Network for ME The objectives of the Statewide Clinical Network for ME will be; Enhance the understanding of ME and promote clarity and consistency for optimal clinical identification and treatment Consider… Continue reading Calling on the Statewide Clinical Network for ME