ME Awareness Day 2024 Webinar Event

You are cordially invited to ME Group Australia (MEGA)’s webinar event on Sat, 11 May 2024, starting at 12:00 pm Qld, Australian time. You don’t need to download Microsoft Teams app and join the live event on your web browser. Purpose for the event As a start-up charity who does not receive government funding, this… Continue reading ME Awareness Day 2024 Webinar Event

Medical Advisor to the Board

We are delighted to welcome Dr Gary Deed to our Medical Advisor to the Board. His expertise and experience will be invaluable asset in planning and delivering ME Group Australia’s vision and aspirations. Dr Deed has been a quiet yet powerful advocate for ME/CFS and related diseases. Over a decade, he contributed his time and… Continue reading Medical Advisor to the Board

Research Advisor to the Board

We are excited to welcome Dr Natalie Eaton-Fitch (PhD) to our Research Advisor to the Board. Natalie is a Research Fellow at the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Griffith University. She holds a multidisciplinary PhD in Immunology and Epidemiology in the field of ME/CFS. Natalie’s research at the NCNED has been instrumental… Continue reading Research Advisor to the Board

Field of Dreams | When you build it, they will come.

Long before ME Group Australia was incorporated and before I wrote the Open Letter, the dream of Speciality Clinic for Myalgic Encephalomyelitis (ME) was growing quietly. I called it “Field of Dreams”. Why did I call it “Field of Dreams”? Here is 9 minutes clip from Universal Picture to refresh your memory. When we build… Continue reading Field of Dreams | When you build it, they will come.

QLD ME/CFS HealthPathway

Did you know that Qld has statewide HealthPathway for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? HealthPathways is a web-based portal with evidence-based information on the assessment and management of common clinical conditions including referral guidance. The pathways are written by General Practitioners with support from local GPs, hospital based specialists and other subject matter experts. Clinical Excellence… Continue reading QLD ME/CFS HealthPathway

Meet with the Minister | Consumers Health Forum of Australia (CHF)

Meet with the Minister | Consumers Health Forum of Australia (CHF)

Consumers Health Forum of Australia (CHF) is Australia’s leading advocate on consumer health care issues. On 5 August, they successfully hosted ABC “Q&A” style webinar with the new Minister for Health and Aged Care, the Hon. Mark Butler MP. I was eager to absorb the Minister’s vision and strategy, particularly in the area of providing… Continue reading Meet with the Minister | Consumers Health Forum of Australia (CHF)

MRI Research Presentation by Associate Professor Leighton Barnden

MRI manifestation of brainstem regulatory deficits in ME/CFS A researcher from the National Centre for Neuroimmunology and Emerging Diseases (NCNED), Associate Professor Leighton Barnden presented their MRI research at the ME/CFS International Conference 2021:RID held in November last year. The NCNED has shared the recording of the Associate Professor’s presentation on their Facebook page. We… Continue reading MRI Research Presentation by Associate Professor Leighton Barnden

Research Innovation and Discovery (RID) International Conference 2021 – Report

Photo by Luis Quintero on Pexels.com

On 16 and 17 November 2021, The National Centre for Neuroimmunology and Emerging Disease (NCNED) hosted the ME/CFS International Conference 2021: RID-Research Innovation and Discovery conference. As a caution, this layperson report may not agree with other attendants’ reports and feedbacks. I wish I could share the details of all presentations and lectures from the… Continue reading Research Innovation and Discovery (RID) International Conference 2021 – Report